Centers for Disease Control and Prevention
www.cdc.gov
800-CDC-INFO (800-232-4636)
National Institutes of Health
www.nih.gov
301-496-4000
Mayo Clinic
www.mayoclinic.com
Patient Services, Inc.
www.patientservicesinc.org
800-366-7741
Patient Advocate Foundation
www.patientadvocate.org
800-532-5274
First Hand Foundation
www.firsthandfoundation.org
816-201-1569
Family Relief Fund
www.familyrelieffund.org
800-856-5712
National Center for Medical Home Implementation
(American Academy of Pediatrics)
www.medicalhomeinfo.org
847-434-4000
National Hemophilia Foundation
www.hemophilia.org
800-42-HANDI
LA Kelley Communications, Inc.
www.kelleycom.com
978-352-7657
Hemophilia Federation of America
www.hemophiliafed.org
800-230-9797
The Coalition for Hemophilia B
http://hemob.org
212-520-8272
Hemophilia of Georgia
www.hog.org/handbook
770-518-8272
World Federation of Hemophilia
www.wfh.org
514-875-7944
The CDC Division of Blood Disorders
http://www.cdc.gov/ncbddd/blooddisorders/index.html
800-CDC-INFO
American Association of Heart Failure Nurses
www.fightheartfailure.com
888-452-2436
American Heart Association
www.americanheart.org
800-452-8721
Heart Failure Online
www.heartfailure.org
Heart Failure Society of America
http://abouthf.org/default.htm
301-312-8635
Heart Rhythm Society
www.hrsonline.org
202-464-3400
GBS/CIDP Foundation International
http://www.gbs-cidp.org
610-667-0131
866-224-3301
Immune Deficiency Foundation
www.primaryimmune.org
800-296-4433
Oley Foundation
800-776-OLEY
Academy of Nutrition and Dietetics
http://eatright.org
800-877-1600
American Society for Parenteral & Enteral Nutrition (ASPEN)
www.nutritioncare.org
301-587-6315
American Gastroenterological Association (AGA)
www.gastro.org
301-654-2055
Association of Gastrointestinal Motility Disorders, Inc. (AGMD)
www.agmd-gimotility.org
781-275-1300
Celiac Disease Foundation
www.celiac.org
818-716-1513
Celiac Support Association
www.csaceliacs.org
877-272-4272
American Cancer Society
www.cancer.org
800-227-2345
Crohn’s and Colitis Foundation of America
www.ccfa.org
800-932-2423
Digestive Disease National Coalition (DDNC)
www.ddnc.org
202-544-7497
Feeding Tube Awareness Foundation
www.feedingtubeawareness.org
National Institute of Diabetes & Digestive and Kidney Disease
www.niddk.nih.gov/
301-496-3583
Short Bowel Syndrome Foundation
www.shortbowelfoundation.org
888-740-1666
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